Public health surveillance of birth defects involves the regular and systematic collection and assessment of data on the occurrence of birth defects. With this data, we can learn where, when, and among whom these birth defects are occurring. Knowledge is the key to provide effective prevention programs and development of sound health policy, and provides the foundation for epidemiological studies into the causes of birth defects.

The FBDR helps identify excessive occurrences of birth defects and is the foundation for the epidemiological research needed to evaluate the clusters. Reducing the human and economic costs of birth defects represents an important public health opportunity to improve the overall quality of life for all of Florida's families. The Registry objectives are:

• To determine the statewide birth prevalence of birth defects using a methodology that links multiple data sources with direct case reporting by licensed health care practitioners and medical record abstracts
• To identify birth defects "clusters" and areas of higher than expected incidence of birth defects
• To conduct surveillance on birth defects trends in the state and evaluate possible association of birth defects with exposure to areas containing environmental hazards
• To promote scientific collaboration and epidemiological studies to determine possible causes of birth defects including exposure to environmental hazards, genetic factors, occupational hazards, diet, maternal illness, drugs, and personal behaviors
• To promote scientific collaboration for the prevention of birth defects including educational and technical training seminars
• To support the use of birth defects data for decisions regarding health services planning, secondary disabilities prevention, and coordination of services between multiple service agencies

Surveillance is the critical component in the state's effort to reduce the impact of birth defects on public health. Detecting and characterizing the occurrence of birth defects will allow public health officials, health care practitioners, researchers, and educators to

• Investigate possible etiologic agents
• Plan and evaluate prevention and intervention programs, and
• Ensure appropriate care for persons in need of services

The Registry disseminates non-confidential data through the Internet and reports. These reports include the routine compilation of rates, changing trends, and other findings and recommendations that are useful to public health officials and other parties interested in preventing birth defects and reducing morbidity and mortality. Professional medical education and technical training are essential to the completeness and accuracy of the Registry. Registry and departmental staff are trained in case ascertainment methodologies that involve linking various data sources, medical records abstracting, and case management. Licensed health care practitioners are educated about reporting requirements, prevention opportunities, and available services.