IMPORTANT LINKS AND RESOURCES!!

Information about central nervous system and neural tube defects can be found at the following sites:

• Anencephaly Net
• Hydrocephalus Fact Sheet National Institute of Neurological Disorders and Stroke, National Institutes of Health
• National Institute of Neurological Disorders and Stroke
• National Organization for Rare Disorders (NORD)
• March of Dimes Spina Bifida
• Microcephaly Information, National Institute of Neurological Disorders and Stroke, National Institutes of Health
• Spina Bifida Association of America

Information about folic acid can be found at the following sites:

• Florida Folic Acid Coalition
• March of Dimes Maternal Blood Screening for Birth Defects
• National Council on Folic Acid

IMPORTANT LINKS AND RESOURCES!!

Congenital Heart Defects, General

• American Heart Association

IMPORTANT LINKS AND RESOURCES!!

Information about Down syndrome can be found at the following sites:

• National Down Syndrome Society
• National Down Syndrome Congress
• March of Dimes Birth Defects Foundation Down Syndrome
• Florida's Early Steps System
• Medline
• Mayo Clinic
• National Institute of Child Health and Human Development (NICHD): Facts About Down Syndrome
  

Information about chromosomal defects can be found at the following sites:

• Chromosome 18 Registry & Research Society
• Florida Regional Genetic Program
• March of Dimes Chromosomal Abnormalities
• March of Dimes Genetic Counseling
• March of Dimes Maternal Blood Screening for Birth Defects
• National Institutes of Health Office of Rare Diseases
• National Organization for Rare Disorders (NORD)
• Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

IMPORTANT LINKS AND RESOURCES!!

Information about orofacial clefts can be found at the following sites:

• My Child Has Cleft Lip and Cleft Palate, Children’s Hospital Boston Information Page
• Cleft Palate Foundation
• American Cleft Palate-Craniofacial Association
• Children’s Craniofacial Association
• International Craniofacial Institute     
• March of Dimes Cleft Lip and Palate Fact Sheet
• National Foundation for Facial Reconstruction
• Let’s Face It

IMPORTANT LINKS AND RESOURCES!!

Information about abdominal wall defects can be found at the following sites:

• My child has… omphalocele
• My child has… gastroschisis
• My child has… a diaphragmatic hernia
• Medline
• National Library of Medicine’s Medline Plus Gastroschisis Information Page
• Great Ormond Street Hospital Abdominal Wall Defects Information for Families

IMPORTANT LINKS AND RESOURCES!!

Information about eye defects can be found at the following sites:

• The Eye Birth Defects Institute
• National Library of Medicine Genetics: Aniridia
• National Library of Medicine Genetics: Anophthalmia
• National Library of Medicine Genetics: Microphthalmia

IMPORTANT LINKS AND RESOURCES!!

Information about ear defects can be found at the following sites:

• Congenital Ear Institute
• Microtia-Congenital Ear Deformity Institute
• My Child Has Microtia, Children’s Hospital Boston
• The National Craniofacial Association: Microtia
• The New York Eye & Ear Infirmary
• Texas Department of State Health Services: Anotia and Microtia Birth Defects Risk Factor Series

IMPORTANT LINKS AND RESOURCES!!

Information about gastrointestinal defects can be found at the following sites:

• Cincinnati Children's Hospital Medical Center: Biliary Atresia
• National Library of Medicine’s Medline Plus: Biliary Atresia
• My Child Has Biliary Atresia, Children’s Hospital Boston
• My Child Has Tracheoesophageal Fistula and Esophageal Atresia, Children’s Hospital Boston
• UCSF Medical Center Esophageal Atresia and Tracheoesophageal Fistula in Newborns: A Guide for Parents
• UCSF Medical Center Pediatric Surgery: Esophageal Atresia and Tracheoesophageal Fistula
• UCSF Medical Center Pediatric Surgery: Hirschsprung's Disease
• My Child Has Hirschsprung's Disease, Children’s Hospital Boston
• UCSF Medical Center Surgery for Children with Hirschsprung's Disease: A Guide for Parents
• My Child Has Pyloric Stenosis, Children’s Hospital Boston
• UCSF Medical Center Pediatric Surgery: Pyloric Stenosis
• Cincinnati Children's Hospital Medical Center: Intestinal Atresia and Stenosis
• My Child Has Duodenal Atresia or Stenosis, Children’s Hospital Boston

IMPORTANT LINKS AND RESOURCES!!

Information about genitourinary defects can be found at the following sites:

• My Child Has Exstrophy of the Bladder and Epispadias, Children’s Hospital Boston
• Association for Bladder Exstrophy Community
• Hypospadias and Epispadias Association
• My Child Has Hypospadias, Children’s Hospital Boston
• Keepkidshealthy.com: Hypospadias
• Texas Department of State Health Services: Renal Agensis Birth Defects Risk Factor Series
• Minnesota Children with Special Health Needs Health Condition: Obstructive Genitourinary Defect Fact Sheet

IMPORTANT LINKS AND RESOURCES!!

Information about musculoskeletal defects and limb malformations can be found at the following sites:

Upper and Lower Limb Reduction Deformity

• CDC Upper and Lower Limb Reduction Defects
• Limb Differences
• On the Other Hand Organization    

Congenital Hip Dislocation

• My Child Has Developmental Dysplasia of the Hip (DDH), Children’s Hospital Boston
• Children’s Hospital and Research Center Oakland, Children's Orthpaedic Associates’ Congenital Hip Dysplasia

IMPORTANT LINKS AND RESOURCES!!

• The National Organization on Fetal Alcohol Syndrome
• The FAS Family Resource Institute
• Centers for Disease Control and Prevention (CDC): Fetal Alcohol Spectrum Disorders
• SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
• Facts About Alcohol Use During Pregnancy
• The March of Dimes Drinking During Pregnancy Information Page

IMPORTANT LINKS AND RESOURCES!!

Birth Defect Fact Sheets in ENGLISH :

• Anencephaly
• Spina Bifida
• Hydrocephalus
• Congenital Heart Defects
• Cleft lip
• Cleft palate
• Down Syndrome
• Microtia
• Fetal Alcohol Spectrum Disorders
• Pregnancy Loss

Birth Defect Fact Sheets in SPANISH :

• Anencephaly
• Spina Bifida
• Hydrocephalus
• Congenital Heart Defects
• Cleft lip
• Cleft palate
• Down Syndrome
• Microtia
• Fetal Alcohol Spectrum Disorders
• Pregnancy Loss

IMPORTANT LINKS AND RESOURCES!!

Information about general birth defects prevention can be found at the following sites:

• Centers for Disease Control and Prevention: Preventing Birth Defects Before and During Pregnancy
• March of Dimes: Quick Reference Fact Sheet on Birth Defects
• National Birth Defects Prevention Network: Birth Defects Prevention Month Packet
• American Pregnancy Association: Tips For Preventing Birth Defects
• Texas Birth Defects Registry: Preventing Birth Defects
• Utah Birth Defect Network: What can I do to have a healthy baby?
• Minnesota Department of Health: Preventing Birth Defects

IMPORTANT LINKS AND RESOURCES!!

Information about sexually transmitted diseases can be found at the following sites:

• March of Dimes: Sexually Transmitted Infections
• Florida Department of Health: Bureau of Sexually Transmitted Disease

IMPORTANT LINKS AND RESOURCES!!

Information about maintaining a healthy weight can be found at the following sites:

• What to Expect at your Prenatal Visits
• A Healthy Baby is Worth the Weight (healthy weight gain and Body Mass Index (BMI) calculator)
• Baby Your Baby
• Learn about Body Mass Index (BMI)
• BMI — Body Mass Index
• Maternal Obesity and Pregnancy: Weight Matters - Medical Perspective on Prematurity

IMPORTANT LINKS AND RESOURCES!!

Information about alcohol and substance abuse can be found at the following sites:

• The National Organization on Fetal Alcohol Syndrome
• The FAS Family Resource Institute
• Centers for Disease Control and Prevention (CDC): Fetal Alcohol Spectrum Disorders
• SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
• Facts About Alcohol Use During Pregnancy
• The March of Dimes Drinking During Pregnancy Information Page

IMPORTANT LINKS AND RESOURCES!!

Information about support groups can be found at the following sites:

• Camp Boggy Creek
• Family Village
• Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)     
• Florida Department of Health Children's Medical Services Children's Cardiac Program
• CHDL Congenital Heart Disease Loss Support Group
• Congenital Heart Information Network Information, Resources, and Support for Families, Adults and Professionals
• Parent Pals.com

IMPORTANT LINKS AND RESOURCES!!

Information about international birth defects organizations and issues can be found at the following sites:

• The International Clearinghouse for Birth Defects
• The National Academies Press: Reducing Birth Defects: Meeting the Challenge in the Developing World
• European Network of Teratogen Information Services (ENTIS)
• New South Wales Birth Defects Register Annual Reports

IMPORTANT LINKS AND RESOURCES!!

Information about national birth defects organizations and general information can be found at the following sites:

• March of Dimes (MOD)
• Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD)
• National Birth Defects Prevention Network (NBDPN)
• Organization of Teratology Information Specialists (OTIS)
• Birth Defect Research for Children, Inc.
• Teratogen Information System (TERIS)
• Teratogy Society
• The Metropolitan Atlanta Congenital Defects Program (MACDP)
• National Birth Defects Prevention Study
• The National Information Center for Children and Youth with Disabilities
• Family Village
• Florida Department of Health Children's Medical Services
• Florida's Early Steps System
• National Organization of Rare Disorders
• OB/GYN.net
• Parent Pals.com

IMPORTANT LINKS AND RESOURCES!!

Information about other population-based state birth defects surveillance programs can be found at the following sites: